Patient responses to daily cardiac resynchronization therapy device data: a pilot trial assessing a novel patient-centered digital dashboard in everyday life
Heart failure (HF) is a growing public health problem in the United States. Implantable cardiac resynchronization therapy (CRT) devices reduce mortality and morbidity; remote monitoring (RM) of these devices improves outcomes. However, patient RM adherence is low, due in part to lack of access to their RM data. Providing these data to patients may increase engagement, but they must be appropriately tailored to ensure understanding.
To examine patients’ experiences interacting with their RM data through a novel digital dashboard as part of daily life.
In this mixed methods pilot study, 10 patients with implantable CRT defibrillators were given access to a patient-centered RM data dashboard, updated daily for 6-12 months. Pre and post health literacy, engagement, electronic portal (MyChart®) logins, and RM adherence were measured; system usability scores were collected at exit; and dashboard views were tracked. Exit interviews were conducted to elucidate patients’ experiences.
Participants (100% white, 60% male, ages 34-80 [mean=62.0, SD=13.4]) had adequate health literacy, increased MyChart logins (p = 0.0463), and non-significant increase in RM adherence. Participants viewed their dashboards 0-42 times (mean=14.9, SD=12.5). Interviews revealed participants generally appreciated access to their data, understood it, and responded to changes; however, there were remaining questions and concerns regarding data interpretation and visualization.
Preliminary findings support potential future integration of a CRT RM data dashboard in HF patients’ daily care. With appropriate informational support and personalization, sharing RM data with patients in a tailored dashboard may improve health engagement.
Cardiovascular Digital Health Journal
Toscos, Tammy PhD; Daley, Carly; Wagner, Shauna; Coupe, Amanda; Ahmed, Ryan; Holden, Richard PhD; Flanagan, Mindy; Pfafman, Rachel; Rohani Ghahari, Romisa; and Mirro, Michael MD, "Patient responses to daily cardiac resynchronization therapy device data: a pilot trial assessing a novel patient-centered digital dashboard in everyday life" (2020). Health Services and Informatics Research. 7.